Feedback (Page 4)
opinions expressed in the Caregiver Feedback pages are those of the
authors and do not necessarily reflect the opinions of the Feline
CRF Information Center.
had not eaten for three days. Although her blood work was a little
better than it was two years ago and we were trying all the medications
our vet had suggested, she had lost almost 2 pounds in the two
years, from 8 1/4 lbs. to 6 1/2 lbs. I could tell my wife was
in tears when she told me to come home early, we had an appointment
for 6:15 last night.
my employer had just announced their Web Page and invited us to
surf during lunch. I found your web page.
So, we still
kept our appointment, but Paddy Paws came home with us to try
some Periactin. Today she ate.
Marge and Ben
I just wanted
to let you know how appreciative I am to have found your home
page on the web. I searched the web for information regarding
CRF, and your page was the only reference I found to be of any
help to me.
My cat BeBe
has had diarrhea ever since I adopted him at 6 weeks of age. My
vet treated this with high fiber prescription diets and assorted
meds all to no avail. Finally he ran a CBC and blood chemistry
test on him. As I am sure you are familiar with the numbers, his
phosphorus was at 12.2, his creatinine at 2.6, and his Bun at
62. My vet was very surprised at this reading, and estimates my
BeBe is operating on only 25% of his kidneys at this point. He
is only 8 months old. If it wasn't for the numbers, you could
never guess he is sick. He terrorizes June, his 2 year old "sister",
plays catch will his red pompom balls, and kneads me every night,
laying with his head between my neck and the pillow. He is so
full of love and spunk for life.
had much useful advice, and again I really appreciate finding
it. It is hard to know he is so ill and so young. I will continue
to keep my head up and be thankful for each day. I wish you both
the best of times with Avatar.
|I wanted to
let you know how much I appreciate the information I received on
your Web site, Feline CRF Information Center. I have a 17 year old
cat, Inky, who has CRF. I was looking for additional information
on America Online and the Internet, and came across a wealth of
information when I found your Web site. The information I found
on the nausea and vomiting and low potassium will be of immediate
help, I couldn't understand why the weakness in Inky's hindquarters.
I can let my cat's Veterinarian know about this symptom now. Thank
I just spent
the afternoon and evening looking through your web site. I found
it listed in an article in the January 1997 issue of Cats Magazine
where the author Barb French gave it a 3 1/2 paw recommendation.
Just last night I was wondering if there was such a thing as kidney
transplants for cats. My Jenny, a 6 year old domestic shorthair,
was diagnosed in March 1996 with CRF. She was on IV fluids for
a week and since then on daily sub-Q fluids. She is holding her
own and the smartest cat in a household of 11 cats. I will be
sending her story and pictures in the near future for your Tribute
Gallery. I think this is a wonderful site and have printed out
many of the pages to give to my vet. I am thinking about checking
into the possibility of a transplant if she is a candidate and
if I can afford it. Right now we go day to day. Give Avatar a
pat on the head for me and Jenny.
my nearly-12 cat, was diagnosed with CRF the day after Christmas.
In only a week, the fluid therapy has made a wonderful difference.
Thank you for this site, since we knew absolutely nothing about
this condition. It's so helpful to know I'm not the only person
struggling with needles and syringes!
lost his fight with CRF on June 5, 1997. Jan has a homepage for
Gummitch at: http://www.geocities.com/Heartland/5144/gummitch.html
for this great web site. I, too, will make sure my vet knows about
it. Having just received the diagnosis of CRF in one of my two
11 year, 7 mo siamese, male littermates, your page has been a
true rainbow in the storm. I plan on using it frequently throughout
the management of this disease and look forward to being able
to better manage my cat's disease through use of your page and
the additional resources it provides. Your time, effort, knowledge,
and skills are greatly appreciated.
SO much for providing such a wealth of information on CRF. My
Sophie was diagnosed 2 months ago with CRF and was given a couple
of weeks to live. Her doctor inserted a heparin valve and I did
hydro therapy every 3-4 hours, round the clock at home.
valve was inserted directly into the vein in her front leg. It
consisted of a rubber valve stem attached to a very fine filament.
The filament was inserted into the vein with a needle which was
then withdrawn. All you could see was the rubber valve stem which
was then wrapped to her leg with tape to protect it. It was neat
and tidy and did not bother her at all. She could walk, sit, wash
herself, and she never chewed on it. The veterinarian showed me
how to insert the IV bag needle into the valve, how to count drips
(important since it's going directly into the blood stream), etc.,
and I then took her home for the treatments. The alternative was
to leave her at the clinic for three days of fluids, which I chose
not to do because of stress on her. I took some time off from
work and did the fluids every 3-4 hours, round the clock. The
heparin valves usually last 3 days (per her doctor) but the fact
that I was doing the injections so often apparently kept the valve
open long --- 8 days. We started with a couple of large doses
and then settled on 300ml per day until the last day or so.
did not bother Sophie at all. I would sit in a rocker and plug
her in and she would usually fall asleep, or at least purr. Treatments
lasted 15 min to 45 min, depending on the rate of the drip. Obviously,
most cats would not sit still for this long. Sophie has always
been unusual in that she loves to be held and hugged tight, and
never gets off your lap unless you remove her. So I was lucky.
So, we got
a good flush but the numbers did not go down a lot, especially
the creatinine. Her attitude was great. Her appetite increased,
she was active, alert, etc.
a few weeks, did another blood test, and she is now on sub-q treatments
since her creatinine has crept up to more than what it was before
the heparin valve. This is the second week. It still takes me
several hours to get up the nerve to poke her and I know she senses
my nervousness. I'm concerned because after the treatments (only
50ml at a time) she seems uncomfortable. She kind of hunkers downs
and turns inward. On the off days, she seems fine. The question
is are the good days due to fact that I AM giving her fluids?
I don't know. The information on making sub-q injections easier
made my day. (I THOUGHT the fluid seemed awfully cold .. now I
will warm it.). Doing the sub-q's at home is so much less stressful
than a car ride to the veterinarian every two days. At least,
it will be if I ever develop any skill at it.
I REALLY appreciate
your page and work. I recently lost my two boys, Cheech and Chong,
to cardiomyopathy. I wish there would have been something similar
to your page out there for them. I was able to find info, but
it was scattered over a number of pages.
added these comments in a follow-up letter: A note of caution
- leaving the heparin valve in for so long is very unusual. A
couple of days is usually the max. Sophie's doctor was very surprised
and monitored it very closely for infection and rejection. I'm
not sure how many veterinarians would agree with what we did.
I think that her doctor believed that with Sophie's complete acceptance
of anything I do to her, along with her deafness, my concern to
avoid undue stress on her, and my commitment to do whatever it
takes to give her a chance (i.e. taking a week off from work to
do the treatments) all contributed to his suggestion of home treatment.
For many people, treatment at the clinic might be a better solution.
a month of knowing of my cat's disease, I am learning to deal
with it better so I can be in a good position to help him deal
with it. Right now my vet says his (Butterscotch's) levels aren't
too high and nothing is indicated other than the k/d food, which
he seems to like. He is eating and drinking fine. He has days
when he seems very tired, and that and the frequency of his visits
to my (purposely) dripping bathtub faucet are the only signs that
he is sick. Well, he's lost weight too.
You are doing
a great service with the Feline CRF page. I know I'll be a frequent
visitor and perhaps one day a contributor. Thank you again for
your hard work, and especially for your kind wishes.
What a great
site! Wish I had seen it a year ago. Mr. Owl was diagnosed Jan
1 1995, at age 20. With sub-q's, he made it another 9 months,
most of that quality time.
Just a few
quick suggestions: NO garlic, or onion powder for cats! Can cause
cats appreciate a heating pad (wrapped in fleece) where they can
move off or on as they wish.
In hot weather,
wrap "Blue Ice" in a towel for them to lie on. Also ice in the
learning to give the sub-q injection, try thinking that you are
pulling the tent of skin over the needle, rather than jabbing
the needle into the cat. Easier to control.
If you see
any fluid leaking after the fluid therapy, apply direct pressure
with a clean cloth or paper towel.
Kudos to you
both for creating such a wonderful tribute to your cat, and providing
such a service to others.
Just a quick
note to thank you for creating such a wonderful page.
My 15.5 year
old Kitty was diagnosed with CRF this past October (she has also
suffered from diabetes for the past 4 years).
her diagnosis, I was devastated and I wanted to learn what I could
about CRF. I immediately began surfing and came upon your page.
The page is wonderful and has given me much encouragement. I have
learned so much from it and continue to visit frequently.
As to Kitty,
she receives 200cc of sub-q fluids every other day -- no problem
in administering them -- she takes them so well (she is such a
sweet little girl). After a bit of a rough start in October (she
wouldn't eat due to the antibiotics she was taking) she did beautifully
until she got a bladder infection. Again, once she was off the
antibiotics, she was eating well, enjoying life and was my Kitty
once again. She continued to do well in November and was doing
well until Christmas week when her appetite noticeably decreased,
so there is some new work to be done.